Bioethics Digital Library

 

Mission: Acquire valuable materials in bioethics and related disciplines, convert these materials into web-accessible and useable digital formats, and to archive and sustain usability of the digital content.

Content will include, but not be limited to: out of print books that are now regarded as “classic texts” in bioethics and humanities; court decisions and legislation; government documents; the “gray” literature (unpublished, but authoritative professional literature such as conference abstracts, presented papers, commission meeting minutes); full text of journal articles; and both audio and visual materials. The scope will include both domestic and international content.

Comments or questions:

Jere D. Odell, M.A., M.L.S.
jdodell@iupui.edu

News

* The Bioethics Digital Library is currently digitizing important materials - soon freely available to interested audiences, anywhere, any time. Check back often for updates and new content!

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Recent Submissions

  • Schwartz, Peter H (2014)
    I argue that ductal carcinoma in situ (DCIS), the tumor most commonly diagnosed by breast mammography, cannot be confidently classified as cancer, i.e. as pathological. This is because there may not be dysfunction present ...
  • Schwartz, Peter H (2011-03)
    Patients should not always receive hard data about the risks and benefits of a medical intervention. That information should always be available to patients who expressly ask for it, but it should be part of standard ...
  • McBride, Kalli D (IU Center for Bioethics, 2011-11-11)
  • Schwartz, Peter H; Imperiale, Thomas F; Kloss, Holly N; Perkins, Susan M; Rawl, Susan M; Sachs, Greg A; Meslin, Eric M (Society for Medical Decision Making, 2010-10-25)
    Research in behavioral economics suggests that individuals facing complex decisions benefit from being given a “nudge” towards one option, especially in situations where making any choice, as opposed to none, is preferred. ...
  • Li, Deqiang; Hallett, Mark A; Zhu, Wuqiang; Rubart, Michael; Liu, Ying; Yang, Zhenyun; Chen, Hanying; Haneline, Laura S; Chan, Rebecca J; Schwartz, Robert J; Field, Loren J; Atkinson, Simon J; Shou, Weinian (2011-01)
    Dishevelled-associated activator of morphogenesis 1 (Daam1), a member of the formin protein family, plays an important role in regulating the actin cytoskeleton via mediation of linear actin assembly. Previous functional ...
  • Schwartz, Peter H; Edenberg, Elizabeth; Barrett, Patrick R; Perkins, Susan M; Meslin, Eric M; Imperiale, Thomas F (2013-02)
    BACKGROUND: While several tests and strategies are recommended for colorectal cancer (CRC) screening, studies suggest that primary care providers often recommend colonoscopy without providing information about its risks ...
  • Torke, Alexia M; Schwartz, Peter H; Holtz, Laura R; Montz, Kianna (2013-04)
    Importance Although there is a growing recognition that older adults and those with extensive comorbid conditions undergo cancer screening too frequently, there is little information about patients' perceptions regarding ...
  • Meslin, Eric M; Alpert, Sheri A; Carroll, Aaron E; Odell, Jere D; Tierney, William M; Schwartz, Peter H (http://dx.doi.org/10.1016/j.ijmedinf.2013.08.010, 2013-12)
    OBJECTIVE: There are benefits and risks of giving patients more granular control of their personal health information in electronic health record (EHR) systems. When designing EHR systems and policies, informaticists and ...
  • Croft, Daniel; Jay, Stephen J; Meslin, Eric M; Gaffney, Margaret M; Odell, Jere D (2012-09)
    As the modern medical system becomes increasingly complex, a debate has arisen over the place of advocacy efforts within the medical profession. The authors argue that advocacy can help physicians fulfill their social ...
  • Sly, PD; Eskenazi, B; Pronczuk, J; Srám, R; Diaz-Barriga, F; Machin, DG; Carpenter, DO; Surdu, S; Meslin, Eric M (2009-08)
    Background Studying the impact of environmental exposures is important in children because they are more vulnerable to adverse effects on growth, development, and health. Assessing exposure in children is difficult, ...
  • Meslin, Eric M; Blasimme, Alessandro; Cambon-Thomsen, Anne (http://www.clintransmed.com/content/2/1/14, 2013-07-27)
    Translating the knowledge from biomedical science into clinical applications that help patients has been compared to crossing a valley of death because of the many issues that separate the bench from the bedside and threaten ...
  • Odell, Jere D (http://bioethics.iu.edu/, 2011-02-23)
    This fact sheet provides a referenced list of data points demonstrating the growth of internationalization in clinical research. In 2008, 78% of all subjects in U.S. funded clinical trials were enrolled in non-U.S. sites.
  • Schwartz, Peter H (http://virtualmentor.ama-assn.org//2012/07/ecas1-1207.html, 2012-07-01)
    Excerpt: A few days after the surgery, Ms. Reid came in for an emergency appointment with Dr. Feng. It was obvious that she was irate,but her voice could barely be heard above the noise of the clinic. "I thought you said ...
  • Sulmasy, Daniel P. (The final version is available from www.springerlink.com., 2008)
    The literature on conscience in medicine has paid little attention to what is meant by the word 'conscience.' This article distinguishes between retrospective and prospective conscience, distinguishes synderesis from ...
  • Meslin, Eric M; Alpert, Sheri; Carroll, Aaron E; Odell, Jere D; Schwartz, Peter H (2012-08-31)
    Patient advocates and leaders in informatics have long proposed that patients should have greater ability to control the information in their electronic health record (EHR), including how it can be accessed by their health ...
  • Meslin, Eric M; Schwartz, Peter H (Cambridge University Press, http://www.cambridge.org/9780521744416, 2010)
    Most people do not know there are different kinds of medical studies; some are conducted on people who already have a disease or medical condition, and others are performed on healthy volunteers who want to help science ...
  • Kinney, Eleanor D.; McCabe, Heather A.; Gilbert, Amy Lewis; Shisler, Janna Jo (Indiana University, 2009)
    Pandemic influenza will pose tremendous challenges to health care providers, state public health authorities, and the public. All will have to conduct business under the most adverse of circumstances. It will be difficult ...
  • Meslin, Eric M.; Goodman, Kenneth (IU Center for Applied Cybersecurity Research, 2009-10)
    In this paper we discuss the ethical and policy challenges presented by the construction and use of biobanks and electronic health records systems, with a particular focus on how these resources implicate certain types of ...
  • Indiana State Department of Health; Indiana University Center for Bioethics (2009-12-01)
    This patient guide address the following questions: What is an influenza (flu) pandemic? What are Altered Standards of Care? Will vaccines ("flu shot") and antiviral medicines work? and How will my family and I get vaccines ...

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