Browsing by Author "Miller, Erin"
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ItemAortopathy in the 7q11.23 microduplication syndrome(Wiley, 2015-02) Parrott, Ashley; James, Jeanne; Goldenberg, Paula; Hinton, Robert B.; Miller, Erin; Shikany, Amy; Aylsworth, Arthur S.; Kaiser-Rogers, Kathleen; Ferns, Sunita J.; Lalani, Seema R.; Ware, Stephanie M.; Department of Pediatrics, IU School of MedicineThe 7q11.23 microduplication syndrome, caused by the reciprocal duplication of the Williams-Beuren syndrome deletion region, is a genomic disorder with an emerging clinical phenotype. Dysmorphic features, congenital anomalies, hypotonia, developmental delay highlighted by variable speech delay, and autistic features are characteristic findings. Congenital heart defects, most commonly patent ductus arteriosus, have been reported in a minority of cases. Included in the duplicated region is elastin (ELN), implicated as the cause of supravalvar aortic stenosis in patients with Williams–Beuren syndrome. Here we present a series of eight pediatric patients and one adult with 7q11.23 microduplication syndrome, all of whom had aortic dilation, the opposite vascular phenotype of the typical supravalvar aortic stenosis found in Williams–Beuren syndrome. The ascending aorta was most commonly involved, while dilation was less frequently identified at the aortic root and sinotubular junction. The findings in these patients support a recommendation for cardiovascular surveillance in patients with 7q11.23 microduplication syndrome. ItemMeasuring the Effect of USCG Port Security Advisory Notices On Trade and Port Security Procedures(United States Department of State, Diplomacy Laboratory Program, 2016) Galbraith, Amanda; Miller, Erin; Turbeville, Shane; Kim, Christopher; Begay, Matthew; Sanchez, Marisela; Franklin, Wayne; Massoth, Jake; Rimmel, Janel; Teal, Sydney; Foley, William A., Jr.Overview: The United States Coast Guard’s International Port Security (IPS) Program is the primary port security assessment office and was established in 2003 as part of the U.S. Maritime Transportation Security Act (MTSA) to reduce risks to U.S. ports and ships, and to the entire maritime transport system. Through the assessment of International Ship and Port Facility Security Code implementation and other measures in foreign ports, the International Port Security Program can determine whether or not there is a reasonable and acceptable level of port security at any given foreign port. This report is comprised of qualitative and quantitative research along with two case studies that compare and contrast two countries and/or ports that either succeeded or failed in complying with this program and received a Port Security Advisory (PSA). Hypothesis: Port Security Advisories (PSA) are issued when a port does not meet the International Port Security Program code. They are an instrument to build and sustain port security practices and improvements. PSAs can give standard regulations for those who use ports in compliance with a PSA as well as create maritime security protocols for other countries that do not have strong port standards. As for the economic impacts, there can be both positive and negative factors depending on the country and the situation. However, we hypothesize that overall, PSAs do not significantly influence a country’s volume of trade. Due to non-compliant countries in reporting, there is no discernable method for tracking or ensuring restrictions. Methodology: We will observe quantitative measures of trade to identify negative impacts associated with the issuance of PSAs. We will also look at quantitative data to identify positive impacts associated with PSAs. We will be using USCG’s HOMEPORT website to identify the PSAs and use COMTRADE to examine trade both before and after a PSA was issued. Trade will be compared to similar countries, those which have not received a PSA. Lastly, we will go over local and regional factors and determine what is currently working and what needs to be improved. Conclusions: Our conclusion is that as a system the PSA process is not necessary an influence on trade. There may be correlations between countries with PSAs issued and changes in trade but there are a myriad of other factors that can impact this making the current methodology less than definitive. There also may be certain countries and/or ports where the correlation appears stronger (See Case Study #1); but overall, our conclusion is that PSAs have a negligible impact on a country receiving them in influencing their volume of trade. ItemOccupational Therapy’s Role in Feeding Therapy: Evaluating Feeding Therapy Process Using Evidence-Based Practice(2023-05-01) Hernandez, Jocelyne; Van Antwerp, Leah; Department of Occupational Therapy, School of Health and Human Sciences; Price, Victoria; Miller, ErinFeeding problems are common within the pediatric population served by occupational and speech therapists. The purpose of this doctoral capstone student project was to create educational materials that would advance implementation of feeding therapy services at K1ds Count Therapy, a pediatric therapy clinic in Brownsburg, IN. After conduction of a needs assessment, it was determined that a lack of educational resources for feeding therapists affected the quality of feeding therapy services offered at the site. A comprehensive literature review was conducted to examine evidence-based practices used in feeding therapy services prior to the creation of the educational materials. To evaluate the effectiveness of these materials, feeding therapists took a pre/post survey. Overall, the educational material was found to be beneficial by therapists; there was an increase of 16% of practitioners' who felt moderately knowledgeable or higher in providing education to caregivers regarding feeding.